I think that I owe everyone an apology...I have had to take a little time to process everything that the DR. told me....I guess it has taken me this long to come to terms with it all..
So I got a call on Thursday the 4th after I had the Heart Cath done on Monday the 1st.. Dr. Kar proceeded to tell me that my heart is very small and that the Heart Mate II that we originally had looked at for me would not work because it is too big for me...
Then he threw in the BOMBSHELL, "we also noticed in this last cath procedure that your Tricuspid valve (which is actually bicuspid in your case) has a leak in it, it is a small leak, however that means that we cannot use the Heart Ware pump either, because if we were to put it in it would make your leak worse, and that would cause even more complications. So after discussing this with the Transplant team, and Transplant Board on Tuesday, we have all come to the conclusion that it is in your best interest to go ahead and proceed with the transplant. You will be placed as a status 2 on the list which means you are at home and stable at this point."
Needless to say I was speechless!!!!
After all of that researching, and talking to other patients about the pump, and finally concluding and having a peace about the decision to go ahead with the pump instead of straight to transplant....(after many long prayers) the decision was taken away from me.
So I was officially put on the list this past Monday, and now we wait!!!!
I am really hoping and praying that I continue to Serve, and Love and Trust HIM while I wait!!!!!!
Friday, November 12, 2010
Day of Heart Cath
My dear friend Jenn went with me to have my Heart Cath done, which was a long day for both of us... Maybe longer for her!!
She came and picked me up at 10:30 am, my appointment was scheduled for 3:30, but they wanted me there by noon....so we got there by then... I was hoping that they would get me in earlier than my time, but they wound up not getting me in, ( well taking me back) until 4:00pm. I did not actually get in the cath room until about 5:00, and I do not think that I got back to my room until about 6:15. We where able to leave at about 8:15, so Jenn got me home at around 9:15 or so... I am sure this was a very long day for her. I so appreciated her company, we had very good conversation...I learned a lot about Jenn and I think she learned a lot about me.
It was a very good day considering!!!!!!!!
She came and picked me up at 10:30 am, my appointment was scheduled for 3:30, but they wanted me there by noon....so we got there by then... I was hoping that they would get me in earlier than my time, but they wound up not getting me in, ( well taking me back) until 4:00pm. I did not actually get in the cath room until about 5:00, and I do not think that I got back to my room until about 6:15. We where able to leave at about 8:15, so Jenn got me home at around 9:15 or so... I am sure this was a very long day for her. I so appreciated her company, we had very good conversation...I learned a lot about Jenn and I think she learned a lot about me.
It was a very good day considering!!!!!!!!
First Day of Transplant Workup
This is the picture that the Transplant Team will use for my file, I am not really sure why they do this but here it is!!
This is from the morning that I started all of my Transplant Process. Kids obviously were not ready for shool yet.
I wanted to have something for the kids to remember everything by...I hooe that later in life they can look back on this time and see how GOD grew thier faith and mine through all of this.
Aren't they just so cute!!!!
Well I do not know what Connor is doing....so don't even ask.
I wanted to have something for the kids to remember everything by...I hooe that later in life they can look back on this time and see how GOD grew thier faith and mine through all of this.
Aren't they just so cute!!!!
Well I do not know what Connor is doing....so don't even ask.
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