Sunday, March 27, 2011
March 27, 2011
I am sad to report (well not all sad) that I was admitted to the hospital on March 26, at 2:15 am. I was having some chest discomfort and pain, so I called teh on call dr, (who knows me and my case) and he told me to come in to the ER. I got to the ER and they checked me out, they said that they did not see anything specific that would be causing the feelins that I was having. They did tell me that my potassium was a little low.. and that I had a little fluid build up again. They got me a room at about 5 in the morning, and that is where I am currently at. St. Lukes Episcopal Hospital at the Med Center in Houston, TX room 625. I have seen my dr twice, and I have been told that my case is such an unusual case that they may have to play with some numbers to get me to a point so that they can go ahead and increase my status on the list. So we may be having to have a heart cath done at some point so that he can check my pressures and see where we stand. He said that he knows that I am tired all the time.....it shows on my monitor that they have me on all the time..(if I get up to do anything my rate goes way up) they are constantly asking if I am ok. He also said that we need to try and get me transplanted soon. I know that I have told you all that this is what I want. That I am tired of all the ups and downs, and changing of plans, and even as I sit here in the hospital, that has not changed one bit! However I will also say that I am scared. This is a major surgery, and something that one would not think at any point in their life that they would have to go thru. But I know that this is the season, and the path that GOD has chosen for ME. He knew that thru HIM I would be able to handle this, and I know that he has plans for after the surgery to use this season to further HIS KINGDOM!!!!!! I pray that with all of this going on that I am able to continue to let HIS light shine thru me, and that everyone that I come in contact with will see the difference is in me because of a LOVING FATHER that I have!!!!! Thank you all for continuing to follow my story, and I pray for you all as well. 5 Trust in the LORD with all your heart and lean not on your own understanding; 6 in all your ways submit to him, and he will make your paths straight. Proverbs 3:4-6 I will post more later!!
Monday, March 21, 2011
March 21, 2011
I am sorry that it has taken me until now to update everyone from my appointment that I had on Friday.
My friend Dani took me to my check-up that I had in the Woodlands, and while I was there, I talked to the other dr's office and they wanted me to come there as soon as I was done in the Woodlands, due to my fluid levels.
Everything went well at the appointment at the Woodlands, and then we trucked down to the Med Center. (while she had her two young kids with her, I felt so sorry for them.)
They dropped me off, and then they went to go to the zoo, or do something that would keep the kids occupied.
I went in and started with blood work, vitals, and then waited to see the dr.. He came in and after checking me out, he said that he wanted me to take 40mg of my diuretic on Friday and Saturday, and then go back to my regular dose on Sunday. Then he wanted me to call and give them my weight on Monday, and they would decide what to do from there.
He said if they could not get the fluid to stay off that they would have to put me on an IV drip, and if they did have to do this that they would be increasing my status.
Needless to say I had a lot of different emotions about this. Scared, worried, excited, anxious, etc..
Then this morning I call the office and tell them that my weight is still up by 3lbs.
The nurse tells me that they are going to increase my diuretic to the 40mg every day. Then I told them that I have mucas in my lungs..to which she said that she thinks that it is from allergies, except I do not have allergies. No sore throat, no runy nose, no cough...but I do have mucas. oh well..
So I have been very, very, frustrated. ever since I talked to them. The nurse is supposed to talk to the dr and call me back, (which will probably be tomorrow) because I told them that I wanted to go ahead and be moved up on the list even if that means I have to stay in the hospital.
I am so tired of all of this up and down with meds, and back and forth with decisions. I know that this is a season, but at this moment I am not able to say that it is ok. I feel like I am at my limit...I do not know how much more of all of this I can take..please pray that I have the strength to get out of my poor little me pit!!!!
This past Sunday our sermon was about changing lives, and how we should be different from what we were before we accepted Christ.
Tommy also talked about how we always say that we are different when we come to church and worship and listen to the sermon, and then on Monday when we get back to our normal life we tend to inch our way back to that old person that we used to be. Well today I feel more like the person before, because of my lack of strength to handle this. I know that I have only been on the list for almost 5 months, but I have been dealing with this disease since July of 2008, and I am just pure tired.
So as I type this I am trying to come back to the ME that I know I am through CHRIST, and trust him that his timing is better than mine.
I was texting my dear friend Wendy today when I was more upset, and this is what she told me.
"It is so much better in God's timing , sweet friend. I have learned that it is better to let it happen organically. I am praying that you have peace with your current situation and acceptance of this place that the Lord has you in. It is tough, but he chose you!! You have the strength, because He has gifted it to you!! Hang in there and fight the good fight!"
I am asking that you all pray this for me, as I need it. I know that God gave my sweet friend these words, because they definately helped me at that moment.. I love you Wendy!!! Praise GOD for you!! He has answered my prayer far beyond what I ever thought I could have through your friendship!!
Until I know more, thank you for the prayers!!!
My friend Dani took me to my check-up that I had in the Woodlands, and while I was there, I talked to the other dr's office and they wanted me to come there as soon as I was done in the Woodlands, due to my fluid levels.
Everything went well at the appointment at the Woodlands, and then we trucked down to the Med Center. (while she had her two young kids with her, I felt so sorry for them.)
They dropped me off, and then they went to go to the zoo, or do something that would keep the kids occupied.
I went in and started with blood work, vitals, and then waited to see the dr.. He came in and after checking me out, he said that he wanted me to take 40mg of my diuretic on Friday and Saturday, and then go back to my regular dose on Sunday. Then he wanted me to call and give them my weight on Monday, and they would decide what to do from there.
He said if they could not get the fluid to stay off that they would have to put me on an IV drip, and if they did have to do this that they would be increasing my status.
Needless to say I had a lot of different emotions about this. Scared, worried, excited, anxious, etc..
Then this morning I call the office and tell them that my weight is still up by 3lbs.
The nurse tells me that they are going to increase my diuretic to the 40mg every day. Then I told them that I have mucas in my lungs..to which she said that she thinks that it is from allergies, except I do not have allergies. No sore throat, no runy nose, no cough...but I do have mucas. oh well..
So I have been very, very, frustrated. ever since I talked to them. The nurse is supposed to talk to the dr and call me back, (which will probably be tomorrow) because I told them that I wanted to go ahead and be moved up on the list even if that means I have to stay in the hospital.
I am so tired of all of this up and down with meds, and back and forth with decisions. I know that this is a season, but at this moment I am not able to say that it is ok. I feel like I am at my limit...I do not know how much more of all of this I can take..please pray that I have the strength to get out of my poor little me pit!!!!
This past Sunday our sermon was about changing lives, and how we should be different from what we were before we accepted Christ.
Tommy also talked about how we always say that we are different when we come to church and worship and listen to the sermon, and then on Monday when we get back to our normal life we tend to inch our way back to that old person that we used to be. Well today I feel more like the person before, because of my lack of strength to handle this. I know that I have only been on the list for almost 5 months, but I have been dealing with this disease since July of 2008, and I am just pure tired.
So as I type this I am trying to come back to the ME that I know I am through CHRIST, and trust him that his timing is better than mine.
I was texting my dear friend Wendy today when I was more upset, and this is what she told me.
"It is so much better in God's timing , sweet friend. I have learned that it is better to let it happen organically. I am praying that you have peace with your current situation and acceptance of this place that the Lord has you in. It is tough, but he chose you!! You have the strength, because He has gifted it to you!! Hang in there and fight the good fight!"
I am asking that you all pray this for me, as I need it. I know that God gave my sweet friend these words, because they definately helped me at that moment.. I love you Wendy!!! Praise GOD for you!! He has answered my prayer far beyond what I ever thought I could have through your friendship!!
Until I know more, thank you for the prayers!!!
Thursday, March 17, 2011
March 17, 2011
So it is Spring Break at the Parker house, and that means that it is quiet, and lonely!!!! The kids are gone to the grandparents houses for their break, they have not been there since the beginning of Decemer, so they were wanting to go up there and visit everyone!!
I am thankful to not have to worry about them this week, however with Travis at work everyday, it is, like I said really quiet and londely!!
I have still been playing yoyo with my diuretic meds, and I am still talking to my nurses daily to see how much I weigh and how I am feeling. I am waiting on a call back today to tell me if they want to change anything or keep it the same. I can't seem to get all of the fluid off, I flucuate between 3-5lbs over my actual weight. I am going tomorrow to a regular check-up with my dr that inplanted my defibrilator. They will check to make sure that all of the leads are still in place, and they will interrogate the device so that they can see what all my heart has been doing.
This appointment is in the woodlands, and I have to be there at 9, so my friend Dani is picking me up at 7:45 to head over that way.
I will update when I know more, for now not much has changed.
Thank you all for your prayers, and constant support while we continue to WAIT!!!!!
I am thankful to not have to worry about them this week, however with Travis at work everyday, it is, like I said really quiet and londely!!
I have still been playing yoyo with my diuretic meds, and I am still talking to my nurses daily to see how much I weigh and how I am feeling. I am waiting on a call back today to tell me if they want to change anything or keep it the same. I can't seem to get all of the fluid off, I flucuate between 3-5lbs over my actual weight. I am going tomorrow to a regular check-up with my dr that inplanted my defibrilator. They will check to make sure that all of the leads are still in place, and they will interrogate the device so that they can see what all my heart has been doing.
This appointment is in the woodlands, and I have to be there at 9, so my friend Dani is picking me up at 7:45 to head over that way.
I will update when I know more, for now not much has changed.
Thank you all for your prayers, and constant support while we continue to WAIT!!!!!
Monday, March 7, 2011
March 7, 2011
I went to the dr last Friday, and they said that the new diuretic that they had me take is helping with getting the fluid to come off. The new diuretic is Tursomide, it is like the lasix that I was already taken just more potent. So they discontinued my lasix
When I called them on Thursday, I was up by about 4 & 1/2 lbs, by friday morning I had lost almost 6.
So this was good.. We need to try and keep it off.
My Dr said that (as you all know) he has been hesitant with me because of my age and going ahead with the transplant. But obviously we had to make a choice this past fall and th only allowed to me after testing was a transplant. I could not get the pump due to a leaking valve.
As of Friday he has said that with me continuing to retain fluid, he is ready for a good heart to come so that we can move forward!!!! This is nice to hear..even though I know that I am on the list and waiting, hearingmy dr say that he also is now at a point that he feels he is ready is a good thing to me.
Today the nurse called to check on my weight and see how I am doing, and I am up by 3lbs. So she talked with my other nurse and then called me back and told me to take 20mg of this medicine and call her tomorrow to let her know how my weight is and how I am feeling. She said that they really want to keep an eye on me due to the fact that this medicine is more potent.
So that is the update as of now. I will continue to let you know when and what changes.
Thank you again for the prayers.
When I called them on Thursday, I was up by about 4 & 1/2 lbs, by friday morning I had lost almost 6.
So this was good.. We need to try and keep it off.
My Dr said that (as you all know) he has been hesitant with me because of my age and going ahead with the transplant. But obviously we had to make a choice this past fall and th only allowed to me after testing was a transplant. I could not get the pump due to a leaking valve.
As of Friday he has said that with me continuing to retain fluid, he is ready for a good heart to come so that we can move forward!!!! This is nice to hear..even though I know that I am on the list and waiting, hearingmy dr say that he also is now at a point that he feels he is ready is a good thing to me.
Today the nurse called to check on my weight and see how I am doing, and I am up by 3lbs. So she talked with my other nurse and then called me back and told me to take 20mg of this medicine and call her tomorrow to let her know how my weight is and how I am feeling. She said that they really want to keep an eye on me due to the fact that this medicine is more potent.
So that is the update as of now. I will continue to let you know when and what changes.
Thank you again for the prayers.
Thursday, March 3, 2011
March 3, 2011
We have a busy weekend ahead of us, well the kids and Travis do anyway...I am sure that I will be pretty still..
My mom was supposed to come in tomorrow, because Travis is going to be going with a freind of ours to their river house to install all of their wiring. However she called this morning and one of her friends passed away this morning and she said that she would be going to Iowa.
In the meantime I was trying to make sure that I had someone that I could stay with, and somewhere for the kids to be, so the kids have sleepovers both nights. I will be staying with my friend Vicki...
SOOOO...then my dr calls me and tells me that they want me to go ahead and come in tomorrow for my visit, instead of waiting until next Friday. They are also calling in some different diuretics for me to take tonight before I go in tomorrow. So I think it will be a long night of restroom breaks!!!!
I believe that my mother will be going ahead and coming in to town to do our laundry and all, she said since they are making me go ahead and come in she wanted to go ahead and come down here. What a day of decisions it has been.
I will update everyone on what the Dr. says tomorrow.
Until then please pray that I have the strength to continue with all of these ups and downs!!!!
Thanks in advance for your continued prayers!!
My mom was supposed to come in tomorrow, because Travis is going to be going with a freind of ours to their river house to install all of their wiring. However she called this morning and one of her friends passed away this morning and she said that she would be going to Iowa.
In the meantime I was trying to make sure that I had someone that I could stay with, and somewhere for the kids to be, so the kids have sleepovers both nights. I will be staying with my friend Vicki...
SOOOO...then my dr calls me and tells me that they want me to go ahead and come in tomorrow for my visit, instead of waiting until next Friday. They are also calling in some different diuretics for me to take tonight before I go in tomorrow. So I think it will be a long night of restroom breaks!!!!
I believe that my mother will be going ahead and coming in to town to do our laundry and all, she said since they are making me go ahead and come in she wanted to go ahead and come down here. What a day of decisions it has been.
I will update everyone on what the Dr. says tomorrow.
Until then please pray that I have the strength to continue with all of these ups and downs!!!!
Thanks in advance for your continued prayers!!
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