Free Bird...FLY!!!!!

I was released from the hospital last night, I think I actually finally left at about 8pm.
So I was admitted on Monday and then released on Friday too long!!!!!!!
My Dr. came in around 5:30 on Friday, and told me that my INR level was a little high, so they changed that medication, and I have to have my blood checked again on Monday, but that I could go ahead and go home. YAY!!!!!

I am supposed to stay in bed or on the couch and not do ANYTHING, He does not want me to get upset, get mad, get excited, get anxious.....anything that would cause a surge of adrenaline.... If I do then it would cause me to have VT's (Ventricular Tachycardia, a rapid heart beat of over 100 that starts in the ventricle)...which is what caused me to be shocked in July of 2010. So we definitely do not want that to happen.

I am still currently a status 2 on the heart transplant list and I am awaiting that call. I know that God knows which heart is the right heart for me, and that his timing is the best. So I will wait on him!!!!

I want to thank all of my friends that so generously gave of their time to come and see me...

Wendy---thank you for taking me on Monday and staying with me until I was admitted, poked for my IV and also for feeding me!!!! I love you dearly!!!!!

Mom--thank you for coming and staying with me on Wednesday, even though you snored, I am glad that you were there.

Sarah, Jennie, Dani, Kathryn,--- thank you ladies for coming and giving me company and for the room makeover!!!! It definitely lifted my spirits!!!

Dani---- thank you for the visit on Tuesday, and being there when Dr. Kar came in...

Justin---thank you for the visit Wednesday afternoon. It was nice of you to come, of course I am sure that you liked leaving work for a while...I am glad that I was your excuse!!

Lizzie---Thank you for the dinner on Wednesday!!! It was great and I enjoyed the company!!!

Ally----thank you for the visit on Thursday and for the cupcake and lunch it was so much better than that stinky fish that the hospital had brought to me!!

Pastor Larry----thank you for the visit and the verses that you shared with me. I enjoyed reading on them a little more after you left..also thank you for the prayers!!

Pam---thank you for the visit on Friday and the conversation..it helped me immensely!!

As always thank you Travis for being a wonderful and loving husband!!
Thank you for never leaving me and sticking through all of this mess with me, I could not do it without you. I love you more now than I ever had!!!!!!!!!!!!!!!!

Thank you to everyone all over who continually pray for me and my family! I am so grateful for your continued faith!!

I will continue to trust and wait on the LORD!!!!!

I can do all things through him who strengthens me. Phillipians 4:3

On my bed I remember you; I think of you through the watches of the night.
Because YOU are my help, I sing in the shadow of your wings.
My soul clings to you; your hand right hand upholds me. Psalms 63:6-8

Hospital

I am writing to you from the hospital.
I have been here since Monday morning, and I am still not sure if I will be going home yet or not.
I have not been able to get out of bed lately so I guess it is a good thing that I am here, but it can get boring and lonely, even with all the tecnology that I have at my disposal.

I have had visitors, so that has been nice..I am just ready to move on to the next step and start feeling better.
I am sorry for such a short post but as I said I do not have much energy to be typing too much. I will update again soon.

THANK YOU FOR THE PRAYERS!!!!!!

Waiting

I was able to get out this past Saturday and Sunday.
On Saturday Travis had to take Connor to a hockey game with the Cub Scouts and so that was leaving Rebecca and I at home. I decided to try and take her and do something with just her and I, so we went and had pizza at Candelari's and then we went and watched Chronicles of Narnia.
It was great, we had a good time together. I was glad that I was able to spend the time with her.

Then on Sunday I was able to go with my girlfriends for our girls night out. I rode with Jenny and Sarah. We went to Charming Charlies. I had never been there before, and let me tell you if you like accessories this is a store after your own heart, a girl could get into a lot of trouble there. I found some really cute stuff, and I also got a few things for Becca.
Then we went to Ghangis Grill for dinner. It was wonderful, I did not leave a bite in my bowl, and if you know me, you know that I do not do that very often. After dinner and visiting for a while we went next door to La Madeline for desert and coffee. We had a blast. I love all of my girlfriends and love spending time with them.

I was wiped out after this and I spent a lot of the day Monday in bed. Which is what happens when I do anything but stay at home. There are even some days that I do not do anything and still I am so tired that I sleep most of the day and night.

I got a call yesterday morning from my nurse and she told me that she talked to Dr. Kar and they agreed that I needed to go ahead and be put as a status 1A on the list. I am still currently a 2, but he is supposed to let me know if we need to have some tests done, or what we do to make me a priority.

I have to go on Friday to have the head CT done. I have to be there at 10:45 am, at the St. Lukes Quinn Tower. Hopefully there is not a bleed, maybe the headaches are just a result of stress. I would say that I have a little stress in my life right now...

I will let you all know what he says about the CT and what he says about changing my status on the list as soon as I hear something.

Thank you for all of your prayers!!!!

The Latest

Well I once again have not posted in a while...
It has been busy around here with all the holidays, and me trying to keep up has gotten me down and not wanting to update..
So once again I am sorry for taking so long to update..

I had to go to the ER before Christmas. I was at church, and honestly I do not know what happened, but I was just sitting there listening to the sermon and all of a sudden I started having pains. I told Wendy that I needed to get out of there..I actually thought I was about to get shocked, and I did not want to be around all of those friends if it did happen.

So she took me in the hall, and it continued to happen, so they got a wheel chair and wheeled me to the car, and Wendy took me to St. Lukes.
I got the the ER and my heart rate was very high, after they interrogated my device they could not find anything. They did say that I was in Tachachardia, but that it was not anything that whey would be seriously concerned about. So they sent me on home.

I was frustrated with what they said, because I know that something was not right, however I am trying to look at it as answered prayers, as I learned later when Wendy and I left the church Pam and all of the friends that where in the group that I was in that night stopped the sermon and all prayed for me, so it was answered prayers that at the time it was nothing serious.

Having said all of that, I have beeen growing even more tired than I already am lately and I have been having headaches, I went to the dr on January 7th and he told me that I am severe enough that he could go ahead and put me as a status 1A on the list, ( I am at a status 2 now) and that that would put me at the top of the list.
He is still hesitant because I am so young...I really get tired of hearing this sometimes..but I trust him.
Since I have been having the headaches, he has me scheduled for a head CT this next friday the 21st at 10:30 to make sure that there is no bleeding in my brain.
After praying and talking to family I think that I am going to tell the dr that if I will still be waiting at home, then I want him to go ahead and put me as a status 1A, I do not think that at this point we are talking about adding years..maybe a month or two, but if I am going to be spending that month or two in the bed then I do not want to do that.

Please continue to pray for comfort and guidance as to all of this, and that there is no bleeding in the brain.
Thank you all for continuing to follow my saga....I love you all!!!!!!! I promis an update soon!!!!

Apology/New Plan

I think that I owe everyone an apology...I have had to take a little time to process everything that the DR. told me....I guess it has taken me this long to come to terms with it all..

So I got a call on Thursday the 4th after I had the Heart Cath done on Monday the 1st.. Dr. Kar proceeded to tell me that my heart is very small and that the Heart Mate II that we originally had looked at for me would not work because it is too big for me...
Then he threw in the BOMBSHELL, "we also noticed in this last cath procedure that your Tricuspid valve (which is actually bicuspid in your case) has a leak in it, it is a small leak, however that means that we cannot use the Heart Ware pump either, because if we were to put it in it would make your leak worse, and that would cause even more complications. So after discussing this with the Transplant team, and Transplant Board on Tuesday, we have all come to the conclusion that it is in your best interest to go ahead and proceed with the transplant. You will be placed as a status 2 on the list which means you are at home and stable at this point."


Needless to say I was speechless!!!!
After all of that researching, and talking to other patients about the pump, and finally concluding and having a peace about the decision to go ahead with the pump instead of straight to transplant....(after many long prayers) the decision was taken away from me.

So I was officially put on the list this past Monday, and now we wait!!!!
I am really hoping and praying that I continue to Serve, and Love and Trust HIM while I wait!!!!!!

Day of Heart Cath

My dear friend Jenn went with me to have my Heart Cath done, which was a long day for both of us... Maybe longer for her!!
She came and picked me up at 10:30 am, my appointment was scheduled for 3:30, but they wanted me there by noon....so we got there by then... I was hoping that they would get me in earlier than my time, but they wound up not getting me in, ( well taking me back) until 4:00pm. I did not actually get in the cath room until about 5:00, and I do not think that I got back to my room until about 6:15. We where able to leave at about 8:15, so Jenn got me home at around 9:15 or so... I am sure this was a very long day for her. I so appreciated her company, we had very good conversation...I learned a lot about Jenn and I think she learned a lot about me.
It was a very good day considering!!!!!!!!

First Day of Transplant Workup

This is the picture that the Transplant Team will use for my file, I am not really sure why they do this but here it is!!

This is from the morning that I started all of my Transplant Process. Kids obviously were not ready for shool yet.
I wanted to have something for the kids to remember everything by...I hooe that later in life they can look back on this time and see how GOD grew thier faith and mine through all of this.

Aren't they just so cute!!!!
Well I do not know what Connor is doing....so don't even ask.