June 30, 2011

I had an appointment with one of the Transplant Dr's yesterday. Apparently you have to have an appointment with them all so that they know who you are. Or so that they can meet you.

Anyway it went really well. Dr. Delgado was his name and he was very nice. He told me that he knows that they have been telling me for a while now that it should not be long for my transplant, but that now that I am at a status 1B, that it should be soon.

After my blood work he said that I was a little anemic, and that I was a little malnourished, so we may start me on iron pills tomorrow when I see my regular dr., and that I needed to get some more protein. So I am once again drinking protein shakes.

He said that nothing was to bad that it would affect me getting the transplant if one came available, but that they want to keep all of my levels as stable as they can, so that I can recover quicker and easier from the surgery.

So please pray that the surgery is soon, however I still want it to be on the LORD's timing. HE KNOWS BEST!!

June 22, 2011

So I need to make a correction, this medicine only increases my status to a 1B, sorry for the wrong information.

I am doing well, I feel like I have a lot more energy in this medication.

I went to the hospital today to meet with the Heart Exchange for our support group, and I also went to the 14th floor where I was at and visited with my nurses. I love seeing them, and not having to make them work. They were all so amazed to see me up and moving around.

On another note, it has been so dry everywhere, as you all know. So I wanted to just THANK the LORD for anwered prayers and sending us some much needed rain. GOD is so faithful, I am so thankful to have him in my life. He is an awesome FATHER!!!

Please keep my reiend Sarah in your prayers as she will be having surgery this next Monday!!

Thank you for all your continued Prayers!

June 16, 2011

I got to come home yesterday, and I am so glad to be back.

I have realized though that as humans we are never satisfied no matter what we are asking for. I was wanting to be home from the hospital so bad, and now that I am here I find myself complaining because I am at home all day by myself.

Since I can't drive that leaves me stuck.

Why can't we be happy with what little blessings he gives us. I was praying as was everyone else that I would go home and He made that happen. (Albeit, with an IV pump) but I am home. Yet I still complain.

I think this is because we are meant to be somewhere else, and even though I love my family and friends dearly, and I thank GOD for every day that he allows me to wake up. I am ready to be in that place that I was created for, where I won't want for anything more than to just be in his presence and worship him for eternity.

Thank you for all of the prayers while I was in the hospital, I know that they are what got me home..

Please continue to pray that in his timing (hopefully soon) I will get the call for my transplant.

Love you all!! night

June 15, 2011

Well the picc line is in. It got put in this morning around 9:30. Was not fun, but it is done and now I get to look forward to going home today.

I was not able to get any meds to help calm my nerves, and while it was being put in I started getting really nervous, so I remembered the verse that I posted on here the other day about Elisha and how he prayed for GOD to open his servants eyes.

So while I was laying there that is what I asked for, and I can tell you from that point it seemed to be so much easier. I knew that his warriors were here with me, and it gave me a sense of peace.

I should be going home today, just waiting for the discharge papers and the nurse with Critical care to come and train me on how to care for this line.

I will update you all later and let you know when I make it home.

Thank you for all the prayers and please continue them

June 14, 2011

Today is mine and Travis's 14th anniversary...it feels like it was just yesterday and at the same time like we have lived a lifetime of challenges.

The insurance approved me going home on the medicine, so tomorrow they are putting in the pic line, and then they will send me home on the medicine.

This will also increase my status to 1A, so that is one more thing that I am glad about.

Thank you for all of your prayers, please continue with them, I can always use them.

Thank you all!!!

June 13, 2011

I am waiting to see the doctor today, he was supposed to see if the insurance would approve me going home with the primacor IV pump. I told me that he would submit it today.

So once again I am just waiting.

I am ready to go home..I know that if they approve it, then I will be here for at least one more day. They will have to place a pic line and then get Home Health set up, and also teach me how to flush the line.

I was also told that if I go home with the medicine then I am not going to be allowed to drive again. So there will be restrictions with this, and also inconveniences, but it makes me feel better, so I think that is what I am looking towards. Remember this is only until I get the call saying that they have a new heart for me.

Please pray for an answer to all of this soon, I am so tired of waiting...it seems never ending.

I will update as soon as I hear something.

Thanks for all of your prayers.

July 10, 2011

Well they took me off of the Primacor yesterday (Wednesday) afternoon, and put me back on it this morning.

My Dr. came in a few minutes ago and said that he can clearly see a huge difference in being on the meds and not being on them.

I want him to let me go home on the meds on an IV pump. Dr Kar has hesitations with this. It has been known to cause VT's Ventricular Tachycardia, which is what made me get shocked last summer. So I completely understand his reservations, however I told him that I think I would rather risk going home on the medicine, than to go home and continue to feel bad.

So he told me that he is going to have them run another test tomorrow, and then present it to the insurance company, and if they approve it, then he will let me go home onit..

If I go home on the IV pump then I have to have home health come in and change the bags of medicine..so they will have to get all of theat set up also.

I had a lady from the church come and see me today and she read to me scripture that I wanted to share, I have read this recently, however it was good to be reminded that even though we can't "see" them, we are surrounded by the LORD's warriors and Angels taking care of us and ready to fight for us when it is time..

2 Kings 6:15-17

When the servent of the man of God got up and went out early the next morning, an army with horses and chariots had surrounded the city.

"Oh, my LORD, what shall we do?" the servant asked.

"Don't be afriad," the prophet answered.

"Those who are with us are more than those who are against us."

and Elisha prayed, "O LORD, open his eyes so that he may see," Then the LORD opened the servant's eyes, and he looked and saw the hills full of horses and chariots of fire all around Elisha.

also here is a verse that I have held on to lately, concerning what we see and do not see and still having faith in the unseen.

John 20: 24-29

Now Thomas, one of the twelve, was not wit the disciples when JESUS came. So the other disciples told him, "We have seen the LORD!"

But he said, "Unless I see the nail marks in his hands and put my finger where the nails were, and put my hand into his side, I will not believeit."

A week later his disciples were in the house again, and Thomas was with them. Though the doors were locked, JESUS came and stood among them and said, Peace be with you!" Then he said to Thomas, "Put your finger here; see my hands. Reach out your hand and put it into my side. Stop doubting and believe."

Thomas said to him, "My LORD and My GOD!"

Then JESUS told him, "Because you have seen me , you have believed; blessed are those who have not seen and yet they have believed."

Please pray that the right decision is made regarding going home on the meds, I know that I want to, but I do not want it to be the wrong decision.

Thank you for all of your continued prayers.

June 6, 2011

My Dr admitted me to the hospital today.

He started me on Milrinone, which is a medicine that helps the heart function.

He said that this medicine has been known to make someone feel better for about 2-3 weeks after a few days of it.

So I will be on it for a few days and see how I do, and then possibly go home. If I continue to feel bad, after those weeks then he said that he may put me on the medicine with a pump so that I can be on it at home also. So we will see how all of this plays out.

Thank you for all the prayers. I will keep you all posted.

June 4,2011

Well hello again.

I think this is a record, tow posts in a week...wow..maybe I can keep up with it!! We will see.

I went to the doctor yesterday. I had called them on Tuesday letting them know that I was not feeling well, and they had me take extra diuretics on Tuesday and Wednesday. I was still not feeling well by Thursday so they told me to come in on Friday, and I did..

My doctor thinks that I got heat exhaustion this past weekend when I went camping, he said that it takes me longer to get back to feeling better after I feel bad, and that sometimes it may not get any better. So if I still am feeling the same come Monday I have to let them know, and he said that he may admit me into the hospital, and put me on a drip.

Not saying that I want to be in the hospital, but if they are going to put me in there, this would be a good time as my kids finished school this past Wednesday and they are not home with us. So we would not have to have the worry of who is going to watch them while I am in the hospital. Also there is a possibility that the drip he puts me on could increase my status. But we will see.. lets not get ahead of ourselves here.

So I still feel the same as I did this week, if I continue to feel this way I will let him know.

I went to bed yesterday when I got home at 4 from the dr and did not get up really until this morning around 8:30, you would think all that rest would make a difference, but no...never fails.

I will keep you posted, I will know more on Monday.

Thanks again for all of the prayers!!